Table 1 Outcome measures
Domain | Measure | Instrument | Data source |
|---|---|---|---|
Engage with and complete baseline assessments | > 70% of caregivers (CGs) will complete baseline assessments | Baseline assessments | Practice staff |
Feasibility to access educational materials and community resources | > 70% of CGs will report using 1 or more materials provided by the practice | Caregiver survey | Study team |
Any participation in the intervention | % of CGs invited to participate who agree to participate in the intervention | Practice log | Practice |
Satisfaction with the intervention | % of CGs who agree or strongly agree that they were satisfied with the intervention | Caregiver survey | Research team |
Net promoter score | % of CGs who report that they felt heard and understood by the practice % of CGs who report that the intervention helped with care of their loved one % of CGs who report that they would recommend the intervention to another CG | Caregiver survey | Research team |
Caregiver well-being | Quality of Life in Alzheimer’s Disease | Survey | Research team |
Identification of potential patients/CG participants in intervention | Ability of practice to generate list of their patients living with dementia | Log | Practice electronic health record (EHR) |
Assessment of eligibility pt/CG dyads for intervention | Ability of practice to identify eligible patient/caregiver dyads (e.g., CG experiencing burden or distress) | Log | Practice EHR |
Recruitment of patient and CG (overall, and % of racial and ethnic minorities) | > 50% of eligible dyads will enroll > 35% of recruited dyads are racial and ethnic minorities (by practice) | Log | Practice log |
Use of patient and CG assessments | > 75% practice personnel who conduct assessments will rate assessments as feasible to use, and > 75% of audited assessments will be completed | Survey of practice personnel conducting assessments Practice EHR audits of assessments | Survey of practice clinicians conducting assessments Practice EHR audits of assessments |
Use of care modules | > 75% will rate modules as feasible to use, > 75% practice personnel who complete the modules will rate the modules as feasible to use, and > 50% of audited modules will be completed | Survey | Survey of practice clinicians and staff |
Clinicians to engage with the tele-video case conference | > 75% of virtual meetings attended | Attendance log | Zoom logs |