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Table 2 Participant age and disease characteristics

From: Feasibility, safety and acceptability of select outcome measures in a physiotherapy study protocol for boys with haemophilia

Characteristics

Mild (n=5)

Moderate (n=5)

Severe (n=26)

Inhibitor (n=7)

(all severe)

Total group (n=43)

Median age (years) (range)

12.6 (9.3–14.6)

9.1 (6.7–15.1)

10.3 (6.3–14.6)

8.6 (6.23–11.15)

10.0 (6.2–15.1)

Diagnosis:

 Haemophilia A

5

2

20

7

34

 Haemophilia B

0

3

6

0

9

Treatment:

 Prophylaxis

2

4

26

n/a

32

 On demand

3

1

0

0

4

 Novel treatment

n/a

n/a

n/a

7

7

Number of children with bleeds in previous year

2

0

10

0

12

Median Annual Bleed Rate (ABR) (range)

0 (0–1)

n/a

0 (0–3)

n/a

0 (0–3)

Known joint arthropathy

0

0

0

1 (right knee)

1

Median HJHS scorea (range)

1 (0–1)

0 (0–2)

1 (0–12)

3 (0–8)

1 (0–12)

  1. aOf 43 boys 16 had HJHS lower limb scores >1, of which, median HJHS score=2 (range 1–6)